Why Support is so Important when it comes to Chronic Illness

October 31, 2014

Tonight, I have decided to write about a topic that has been weighing heavily on me lately and that is how important it is to surround yourself with people that love and support you know matter what. Having chronic illnesses can be a lonely and dark world so having those people in your circle that care and hear you out no matter what is so important.

When I was first diagnosed with my first set of spinal issues almost 4 years today. Most people thought it was no big deal because I was born with a disability and I am just used to powering on. But I was so scared because deep down I knew this was just icing on the cake and I knew something greater and more powerful was going on. It was during this time that friends truly rallied around me and supported me.

As, I was diagnosed with more and more illnesses like food and environmental allergies those friends slowly dropped away. I believe this is because people were scared of the unknown and how to help. But the fact of the matter was I just wanted someone to listen. I didn’t want them to solve the problem. These illnesses are no one fault they just happen. It is in the darkest of times when most people just need a hug and some encouraging words.

Fast forward to March 2014, I was officially diagnosed with EDS type 3 with some vascular symptoms. At this point and time I felt so alone and depressed. But, at the time I was relieved because my medical mystery was finally solved and 15 years of searching for answers and just to be told it was in head was over. When I told the few remain people I felt close to of this new development some people just told me that they had never heard of it but were interested in learning more, some just stopped talking to me all together and some people just listened.

Support is one of those things you don’t realize is important until its gone. People support the people you love and care about. When you see someone that is struggling please reach out to them with a text, phone call or offer to come and visit although that is difficult for those of us with chronic illness to muster the energy to have visitors. That support means the world to us while helping us feel less isolated and connected to the world.


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