Tonight, I have decided to write about a topic that has been weighing heavily on me lately and that is how important it is to surround yourself with people that love and support you know matter what. Having chronic illnesses can be a lonely and dark world so having those people in your circle that care and hear you out no matter what is so important.

When I was first diagnosed with my first set of spinal issues almost 4 years today. Most people thought it was no big deal because I was born with a disability and I am just used to powering on. But I was so scared because deep down I knew this was just icing on the cake and I knew something greater and more powerful was going on. It was during this time that friends truly rallied around me and supported me.

As, I was diagnosed with more and more illnesses like food and environmental allergies those friends slowly dropped away. I believe this is because people were scared of the unknown and how to help. But the fact of the matter was I just wanted someone to listen. I didn’t want them to solve the problem. These illnesses are no one fault they just happen. It is in the darkest of times when most people just need a hug and some encouraging words.

Fast forward to March 2014, I was officially diagnosed with EDS type 3 with some vascular symptoms. At this point and time I felt so alone and depressed. But, at the time I was relieved because my medical mystery was finally solved and 15 years of searching for answers and just to be told it was in head was over. When I told the few remain people I felt close to of this new development some people just told me that they had never heard of it but were interested in learning more, some just stopped talking to me all together and some people just listened.

Support is one of those things you don’t realize is important until its gone. People support the people you love and care about. When you see someone that is struggling please reach out to them with a text, phone call or offer to come and visit although that is difficult for those of us with chronic illness to muster the energy to have visitors. That support means the world to us while helping us feel less isolated and connected to the world.


What is normal really?

October 24, 2014

It has been over a year since I wrote in my blog and I have been encouraged by many friends and family to start blogging again and share my journey with others. I have been very reluctant to do so. Those of you who know me these last 4 years have been extremely transformative for me. I graduated college in May of 2011 and was thrown into a the “real” world which has been less then kind to me. I also have been diagnosed with 35 chronic illnesses and have been on the hunt to make my life as “normal” possible.

Normal is such an odd term to me because what is normal really? We all experience different things and different emotions which cause us to frame our world differently. Being diagnosed with all of these illnesses has really changed my world because when you are living in a body that can turn against you at any moment. You really cherish all moments no matter what the circumstances because you are always learning and growing from each experience. Which makes you more equipped to handle the next success or hurdle.

Before my personal medical Armageddon I was a workaholic that was always on the go looking for the next project and new trend. But in reality I was missing out on so much life because I was worried people would think less of me because of my disability so I in a way over-compensated based on what I thought society believed.

Now, that I am diagnosed I know my limits and I do what I can and I do my best not to beat myself up emotionally if things do not get done because in the end I am doing the best I can. I am learning the art of self-care. Sadly, most people do not know the importance of self-care. You cannot be your best if your burnt out and exhausted.

So, this is my challenge to you as the reader. Don’t worry about what is normal we all have a different normal because we all have different life experiences. Also, treat yourself and indulge in some self-care. I highly suggest binge watching something on Netflix. It will allow you to re-charge your batteries and refocus.

Please check back later to learn more about my journey! Until later!